Thanks for visiting my web site. I'm one of just 1000 people in the world with Diamond Blackfan Anemia. This is when bone marrow produces insufficient red blood cells for the body's needs, as a result, I used to have a blood transfusion every couple of weeks. I'm alive because people like YOU donated blood, for 19 years I depended on others for this life-giving support, thank you!
On July 25, 2013 I had a marrow transplant ~ ONE marrow donor matched me, an international donor helped change my life. I am not yet one year out of marrow transplant, however, I am am to live without transfusions for the first time in my life!
But I cannot forget, there are many children who need blood transfusions because of burns, injuries, surgeries, cancer and anemia. Did you know the premature baby is the number one recipient of donated blood?
1. Lizzie Bell Endowment at the UA Foundation will ensure any child 'living' at the hospital I grew up in to have the best care possible. I did not always like being at the hospital but when I arrived there as a 7 week infant my delicate situation was immediately addressed with the best care a baby could receive. I want to make sure I give back, someone paid for me to be able to have the best, I can make sure it is there for the next child "upon diagnosis". This is Arizona's Pediatric Research Center, I am proud to support the other kids who must receive their care here in Southern AZ.
2. Team Lizzie Bell's mission addresses the 7 Pediatric Populations constantly needing blood and blood products and the advancement of Pediatric Hematology. This campaign is all over the world, blood donation and marrow registry is really important!
3. Lizzie's Loot addresses the comfort of the child from birth to young adult ~ this is about toys, gift cards, medical equipment and staff needs to better serve University of Arizona Medical Center and Diamond Children's here in Tucson, AZ. It is my way to provide LOOT kind of things like kid size MRI machines or teachers specializing in chemo brain or UA Blankets and other Wildcat Gear.
Let's talk soon, CONTACT ME!